Agencies, Organizations, Universities and others are often looking for participation of families and professionals for current research and survey projects. Each opportunity listed below has contact information if you would like to participate. Please contact the specific entity that is sponsoring each research/survey opportunity if you would like more information.
Unless otherwise noted, Hands & Voices does not necessarily promote the goals and objectives of listed research/survey opportunities and participants are advised to clarify any questions/concerns prior to participation with contacts listed for each research/survey opportunity.
For information on submitting your project for inclusion on this page please read our Submittal Request Sheet.
Parent Research / Survey Opportunities
- Descriptions of Studies -
Expectations towards hearing aids for children & teens
As a parent of a child with hearing loss, it is important to understand that children of different ages have different needs, but the need to maximize quantity and quality of sound is important at every age.
Phonak takes a holistic approach to help the social, emotional and cognitive development of children with hearing loss from the moment they begin their hearing journey. Our products aim to make the most of every interaction while being easy to use, high performing and reliable solutions at the same time.
In order to constantly improve our hearing solutions, we are interested to learn more about the specific needs and expectations of children and teens who currently wear hearing aids.
Therefore we invite all parents of children/teens aged up to 18 years as well as older teenagers (15-18) to participate in an online survey (duration approx. 15 minutes). Your input is greatly appreciated and will help us to further develop our pediatric hearing solutions.
Questionnaire link to participate:
Deaf and Hard of Hearing Narrative Project
For this study I am looking to recruit children between the ages of five and seven years old that use English or American Sign Language as their primary language at home and have a diagnosed hearing loss. This study would not be appropriate if your child has vision impairments that would impact them seeing the story or the inability to attend to a story for at least 20 minutes.
This study takes place entirely on ZOOM at a time that is convenient for your family. The meeting will take roughly 30 minutes. During our meeting time, your child will be shown two stories, in either static book or silent movie format, and then asked to retell what they observed. Following our zoom meeting with your child, we will analyze his/her language at the microstructural and macrostructural level to determine how their narrative productions differ across each condition. A similar study was done by Dr. Puhlman and her colleagues with typical children and they found that children had significantly better language at both the micro and macro levels in the movie format. I am predicting that this will be seen with children who are Deaf or hard of hearing. As a thank you for their participation, your child will be sent a book of their choice.
Interested families are asked to contact Jane Puhlman (email@example.com).
DHOH Narrative Project
The University of Maine
Caregivers’ Experiences in Accessing Mental Health Treatment for their Children
Our names are Kim Hager, LICSW, and Maria Martinez Calderon, LMHC. We both work as outpatient therapists at Children’s Friend, Inc., an affiliate of Seven Hills Foundation, in Worcester, MA. We are interested in studying the experiences in and barriers to accessing mental health services for families, especially with children who are deaf or hard of hearing. The hope is the survey results will assist mental health providers in tailoring services to meet families’ needs.
We are asking caregivers to complete a free and anonymous online survey, which takes approximately 10 to 20 minutes. Caregivers include biological parents, adoptive parents, foster parents, step-parents, and guardians with children under the age of 18 living anywhere within the United States. The survey is in both English and Spanish.
The link to the English survey is: https://www.surveymonkey.com/r/PQFSMVV
The link to the Spanish survey is: https://es.surveymonkey.com/r/2DXD5TX
You are welcome to pass on the links and/or give the attached flyers to anyone willing to participate in the survey.
We appreciate your assistance in making this research study possible!
Kim Hager, LICSW, and Maria Martinez Calderon, LMHC
The Impact of Screen Time/Technology on Children with Hearing Impairments
This study explores the correlation of screen exposure on the executive functioning and social skills of children with hearing impairments between the ages 8-12. Executive functioning includes mental skills utilized in learning and development such as impulse/emotional control, working memory, prioritizing, and task organization. These skills are crucial to understanding positive behavior and achieving goals. Social skills are the ability to communicate with others verbally and non-verbally. These skills provide the foundations for academic and life success. This research seeks to determine if a correlation exists between technology/screen time and executive functioning and social skills in children with hearing impairments.
A survey will be administered to children with hearing impairments who will be assessed using the Social Skills Improvement System (SSIS) and the Behavior Rating Inventory of Executive Function (BRIEF) tests. Using the SSIS, I will be able to determine an individual's social competence from an outside perspective as well as a self-evaluation. The BRIEF will assess behavioral regulation (control impulse, shift attention, regulate responses) and metacognition. The data collection instruments will include a survey about screen exposure, the Behavior Rating Inventory of Executive Function (BRIEF), and the Social Skills Improvement System (SSIS) Rating Scale. These materials will be sent via mail and include a stamped and return address envelope. Once the materials are mailed back, children’s screen time surveys will be assessed, as well as the test data to determine the effects of screen time/technology exposure on children with hearing impairments. This data will then be compared to existing data for typically developing children. Children and parents who send back their fully completed materials packet will be entered into a raffle for the chance to win a $100 Visa gift card.
For more information or to reach out to participate, please email firstname.lastname@example.org
Communication Intervention for Toddlers with Hearing Loss
The Early Intervention Research Group (EIRG) at Northwestern University is conducting a virtual language development study for children with hearing loss and their parents, funded by the National Institute of Deafness and Other Communication Disorders (NIDCD). Infants with bilateral hearing loss younger than 19 months old would be eligible to participate with a parent. Families can use any communication modality. Participation in this study is in addition to other services families may already receive. Parents will receive tips about how to support their child’s language development, reports about their child’s development, compensation for their time (up to $950), and an iPad and equipment to help with virtual visits. Some families may also receive virtual parent coaching to work on communication strategies with their child.
To learn more about your eligibility and the study, you can do any of the following and Laura from the Early Intervention Research Group will be in touch!
Profiles of Language and Literacy Acquisition in D/HH Children who use Sign
We are looking for D/HH children who use sign language, ages 4-18, to participate in a research study. We are investigating assessment strategies to identify typical vs. delayed sign language acquisition and learn how they relate to attainment of academic skills. Activities will be done remotely over Zoom.
Who is eligible:
- D/HH children who use sign language at school to learn. There are no restrictions on program philosophy (ASL/English bilingual, Total-Communication, etc.)
- While participants may be learning spoken language as well, sign language should be a primary mode of learning and expression in the classroom.
What participation involves:
- Evaluation over Zoom platform using standardized testing, games, and stories
- Participation will take approximately 3 hours depending on age. You may be asked to schedule more than one session if extended attention to this platform is difficult for your child
- Parent questionnaires
What is needed:
- Internet connection with access to Zoom
- Zoom navigation including using a mouse to make selections on a screen. (A caregiver may support the Zoom navigation and use, but should not help with responses)
What you will get for participating:
- $20/hour of participation (up to $60 total provided as an Amazon gift card at end of participation)
- Research report including performance on select standardized measures and profile of language use
How to participate:
- Contact James McCann at james.mccann @gallaudet.edu
- This research has been approved by the Gallaudet Institutional Review Board (IRB) and supported by the Office of Research Support and International Affairs at Gallaudet University
How do little ears with hearing loss hear?
What is the purpose of the study?
The purpose of the study is to identify neural factors that influence hearing aid benefit in children with hearing loss. Specifically, the study will use brain waves (EEG) to measure how well a child hears through his/her hearing aids. Using brain waves could help identify children who have difficulty hearing speech through hearing aids earlier than routine hearing tests and therefore help improve clinical care.
Who is eligible? 5 to 17 year old children with permanent (sensorineural) hearing loss in one or both ears. Children with hearing aids and/or one cochlear implant are eligible. Children with two cochlear implants are not eligible.
What does participation involve?
- Attending 1-2 test sessions at the Waisman Center, University of Wisconsin, Madison, WI
- Non-invasive clinically used procedures:
- Routine hearing test
- Watching a video while speech sounds are played in one ear and brain waves are measured
- We will make custom ear molds, if not available
What can I expect for my participation?
- $10/hour compensation
- Travel reimbursement (if driving >7 miles)
- Small prizes throughout test sessions
- Free parking, flexible scheduling, snacks, and beverages
Contact if you have any questions or are interested in participating:
Name: Emma McGrath
Pregnancy Outcomes and Experiences among Deaf and Hard of Hearing Women
The Lurie Institute for Disability Policy at Brandeis University’s Heller School for Social Policy and Management and the University of Michigan Department of Family Medicine are currently studying pregnancy outcomes and experiences in women with a hearing loss. Our team of researchers recently launched a new online survey for Deaf and hard of hearing mothers who have given birth in the last 10 years. The goal of this survey is to help us understand what may be driving the increased risk for adverse birth outcomes and improve pregnancy care for Deaf and hard of hearing women.
If you, or anyone you know who might be interested in taking the survey (available in ASL, English or Spanish), please follow this link:
Families & Hearing Study
The enormous variability in developmental outcomes of children with hearing loss is a significant clinical problem. Research efforts to account for individual differences that focus almost exclusively on hearing loss- or child-related factors are a critical barrier to progress in the field of pediatric audiology. In this 5-year project (funded by the NIH-NIDCD #DC014956), we are examining the influence of family dynamics on spoken language and executive function outcomes in children with hearing loss.
Who we are recruiting and what is involved:
The Developmental Speech Lab at The Ohio State University and the DeVault Otologic Research Lab at the Indiana University School of Medicine are jointly recruiting families of children age 3-8 years, who have an English-speaking parent and who wear hearing aids or cochlear implants OR have typical hearing and language development.
Help us learn more about the contribution of family environment to developmental outcomes in children.
Caregivers complete questionnaires. Caregivers and children participate in games and exercises involving language and thinking. All sessions happen in the home with two clinical researchers from Ohio State or the Indiana University School of Medicine. Families participate in 3 sessions over the next 2 years, at their convenience.
Participants receive up to $625 in gift cards.
For more information in or near Ohio, contact The Developmental Speech lab at 614-688-2235 or email@example.com
For more information in or near Indiana, contact the DeVault Otologic Research Lab at 317-274-4915 or firstname.lastname@example.org
Parent Child Interaction therapy for parents and deaf children
- Do you have concerns about your child’s behavior?
- Do you feel that you and your child could improve on communication?
- Are you a parent with a deaf child?
- Is your child between the ages of 3 to 6 years?
PCIT is an empirically-supported treatment for young children with emotional and behavioral disorders that focus on improving the quality of the parent-child relationship. Treatment lasts a minimum of 12 weeks.
If you are interested in learning more about PCIT to see if your family qualifies please contact email@example.com
These services will be offered at no charge to families who are willing to commit to the program. The sessions are held weekly at Gallaudet University and are supervised by licensed psychologist.
This research has been approved by Gallaudet University’s Institutional Review Board. If you would like to receive PCIT services for you and your family, please contact me us at firstname.lastname@example.org.
The George Washington University Cochlear Implant Communication Lab
Participants needed By George Washington University Researchers
Prosody & Voice Characteristics of
Children Using Cochlear Implants
Hello! We are researchers from the George Washington University Cochlear Implant Communication Lab located in Washington, D.C. The goal of our research is to better understand how young, deaf children with cochlear implants and/or hearing aids develop their speaking and listening abilities. We are currently obtaining data on both hearing children and those with cochlear implants. Our research will investigate characteristics of language, sound production, voice, rhythm, and inflections during various speaking tasks.
Who is eligible for this research?
We are looking for participants with normal hearing, hearing aids, or cochlear implants who exhibit reliance on spoken English in the home and who meet the following criteria:
- Are 4 to 8 years old
- Have no motor or cognitive difficulties that would affect development
- Are located in the Greater Washington, D.C. area, including Northern VA and MD
- For those who are deaf or hard of hearing:
- Are profoundly deaf with the deafness detected at or near birth
- Have received their first implant or hearing aid prior to 36 months of age
What is involved if my child participates?
- Your child will be involved in a number of tasks aimed at sampling their speech, listening, and language abilities. These include standardized testing, computerized listening games, and play activities aimed at sampling the child’s language skills.
- Participation in tasks will require 1 to 2 visits of 60 to 90 minutes each.
Following completion of data collection:
- You will receive $100 to cover transportation, parking and time involved.
- Your child will receive an educational toy following each session.
- Results of standardized testing will be shared with the parents.
If you have questions or are interested in participating in this study please contact:
James Mahshie, Ph.D.
Professor, George Washington University
Sangsook Choi, Ph.D.
2115 G St., NW
Washington, DC 20052
(202) 994-3195 or email email@example.com
Study: Binaural Pitch Fusion
in Children with Cochlear Implants and Hearing Aids
The goal of our research is to understand how children who wear hearing aids, cochlear implants, or a hearing aid and a cochlear implant combine sounds between the two ears, and how this may explain some of the variability in speech and music perception abilities. We are also studying how age and development in children affect how sounds are combined between the ears.
Your child may be eligible to participate if he/she:
- Is between 6-8 years of age
- Has a moderate to profound sensorineural hearing loss in both ears, and:
- Wears hearing aids in both ears, or
- Wears a hearing aid in one ear and a cochlear implant in the other ear, or
- Wears cochlear implants in both ears
- Has no motor or cognitive difficulties that would impact testing
- Resides in the western U.S., including WA, OR, CA, ID, NV, AZ and UT.
What is involved if my child participates?
- Your child will be asked to listen to sounds and words, and respond by pressing the appropriate button on a computer touch screen.
- Your child will receive stickers, prizes, and other motivators during study participation. They will be able to take breaks during testing.
- The time needed to complete the testing each year is a total of 5-6 hours, which can be divided into up to four shorter sessions of 1-2.5 hours per session.
- Your child would return for testing once a year for five years.
Participants will receive:
Your child will be paid $15-$25 per hour for the study, plus travel and overnight costs, as applicable. More information about the study is available online at http://www.ohsu.edu/cihalab.
If your child would like to participate in this study or you would like more information, please contact:
Lina A.J. Reiss, Ph.D.
This study is funded by the National Institute on Deafness and Other Communication Disorders
The Looking Game:
Children’s Social Play, Language Development, and Eye Contact with Adults.
Is your child deaf or hard of hearing?
Participate in our study!
We are looking for children who are deaf or hard of hearing to play during a Looking-Game Study. We want to learn about children’s social play, language development, and eye contact with adults. Parents can learn about related research discoveries. Children play with researchers and toys. Parents are with their child for the whole visit. Paperwork for parents is in English. Participation is completely voluntary.
Involves a one time, one hour visit to the University of Washington. Parents will be compensated for travel and parking expenses. The child will receive a thank you gift for participating in our study.
Child may be eligible to participate if:
- He/she is 8-36 months old
- Deaf or hard of hearing
Language Development in Children with Hearing Loss Research Project
Your child may be eligible to participate if he/she:
- Is between 6 and 30 months
- Has a hearing loss
Participants will receive:
All children will receive at no cost to you:
- Comprehensive language assessments 4 times over 18 to 30 months
- Monthly speech and language check-ups
- Assessment reports about your child’s language development
- Some money for your time
Participants will be randomly chosen to receive either parent training and monthly language check-ups OR monthly language check-ups only.
Only children assigned to the parent training intervention group will receive:
- Weekly, 1-hour parent training sessions at your home for six months where parents learn language teaching strategies.
Megan Roberts, Ph.D., CCC-SLP
This study is funded by the National Institute on Deafness and Other Communication Disorders
Research Volunteers Needed for
a Study at the University of
Chicago Medical Center!
We are looking for parents of children with hearing loss to participate in a toddler sound environment study
Families who qualify may earn between $350 and $400
Dr. Suskind and her research team at the University of Chicago Medical Center are interested in learning more about toddler sound environments. As part of this study, you will complete recordings of your child’s sound environment and the research team will analyze the recordings using special software. Information gathered will help find ways to improve children’s sound environments and help them reach their potential!
You and your child may qualify if:
- Your child is under 4 ½ years old
- Your child has moderate to profound hearing loss
- Your child uses hearing aid(s), bone-anchored hearing aid, or cochlear implant(s)
- Your family uses spoken language in the home
- You have at least one day per week when you’re home with your child
Call 773-834-8629 to find out if you qualify!
Hands & Voices is pleased to announce it’s Partnership with the:
National Early Childhood Assessment Project (NECAP – “kneecap”)
Principal Investigator: Christine Yoshinaga-Itano, Ph.D.
Project Coordinator: Allison Sedey, Ph.D.
We are excited to announce a new project awarded to Dr. Christine Yoshinaga-Itano at the University of Colorado-Boulder by the Centers for Disease Control (CDC). The aims of this project are to:
- support interested states in implementing a standard assessment battery for children from birth to 4 years of age who are deaf or hard of hearing
- examine the feasibility of creating a national database of early childhood outcomes
- assist states in interpreting assessment results and using these results to drive intervention goals and decisions
- characterize the service delivery models of early intervention programs throughout the United States
- determine early intervention program characteristics that are related to more successful language outcomes for children who are deaf or hard of hearing
All children from 6 months to 4 years of age with permanent hearing loss are eligible to participate. Children whose loss is not permanent (e.g., cases where the hearing loss is solely a result of otitis media) are not eligible. Eligible children may have:
- Unilateral or bilateral loss
- Conductive, senori-neural, or mixed hearing loss
- Any degree of permanent hearing loss from mild to profound
- Multiple disabilities or hearing loss only
- English or Spanish as the language of the home
Benefits of Participation
Individual Child and Family Benefits
- Includes parent input in the assessment process
- Measures children’s skills and abilities across a variety of developmental areas
- Allows parents and interventionists to monitor a child’s progress over time and identify potential delays at their onset
- Compares a child’s language abilities to both children who are hearing and other children with hearing loss
- Provides a data-driven approach to making educational programming decisions
- Assists in the generation of IFSP/IEP goals
- Provides statewide and program-specific accountability data on an annual basis
- Allows programs to examine outcomes across different subgroups of children
- Informs professional personnel preparation needs
- Includes access to normative test data on children who are deaf or hard or hearing
- Results in networking with program directors and EHDI personnel in other states
- Gives states an opportunity to contribute to a national database which will allow us to characterize the language strengths and weaknesses of children with hearing loss and identify factors that are predictive of more successful language outcomes
If you have questions or are interested in becoming involved in this project, please contact:
University of Colorado-Boulder
Boulder, CO 80309
Hands & Voices Contact: Janet DesGeorges
Science of Learning Center on Visual Languages and Visual Learning (VL2)at Gallaudet University
ANNOUNCING the launch of a longitudinal study of young deaf and hard of hearing children by the Science of Learning Center on Visual Languages and Visual Learning (VL2) at Gallaudet University. The three-year study will involve gathering detailed information and collecting data regarding young deaf and hard of hearing children’s language development, communication, and developmental profiles.
Along with surveys of parents, teachers, and school administrators, a comprehensive battery of assessments administered by trained evaluators from Gallaudet University will be given to deaf and hard of hearing children whose families agree to participate.
VL2 is seeking schools to participate in the study. Parents are encouraged to talk to their school administrators and inform them about the study. Participation is not limited to children who sign; all communication approaches are eligible to participate.
I have set up a blog on the VL2 Public Wiki http://vl2wiki.editme.com/ to provide updates about the project and to answer questions that you may have.
Sharon Baker, Research-Practice Integration Team member
For more information or to register as a partnership school, contact:
Thomas Allen, Ph.D., Principal Investigator
Science of Learning Center on Visual Language and Visual Learning
Gallaudet University SLCC 1200
800 Florida Avenue NE, Washington, DC 20002
Science of Learning Center on Visual Language and Visual Learning (VL2)
The VL2 Center, located on the campus of Gallaudet University in Washington, DC, is one of six Science of Learning Centers (SLC) funded by the National Science Foundation grant # SBE-0541953. The Center brings together deaf and hearing researchers and educators from national and international institutions to conduct interrelated studies across disciplines. VL2’s primary mission is to gain a greater understanding of the biological, cognitive, linguistic, sociocultural, and pedagogical conditions that influence visual language and visual learning. More information may be found at www.vl2.gallaudet.edu.
SURVEY ON FM USE FOR CHILDREN WITH HEARING LOSS
To our colleagues and to parents of children
with hearing loss
We are trying to understand how many children with hearing loss are using FM systems. If they are using them, at what ages, and in what conditions they are used. We have developed a quick and easy survey that we want to distribute to parents of children with hearing loss (assuming that they will know best how and where their children are using FM's). We would appreciate it if you could share this survey link with the parents of children you work with in the hope that they will be willing to complete the information. Families with more than one child with hearing loss should complete the form separately for each child. We are really grateful for your help
Thank you, Jane Madell and Carol Flexer
Jane R. Madell, PhD
Director, Pediatric Audiology Consulting
Carol Flexer, PhD
Distinguished Professor Emeritus
University of Akron