Research / Survey Opportunities
Agencies, Organizations, Universities and others are often looking for participation of families and professionals for current research and survey projects. Each opportunity listed below has contact information if you would like to participate. Please contact the specific entity that is sponsoring each research/survey opportunity if you would like more information.
Unless otherwise noted, Hands & Voices does not necessarily promote the goals and objectives of listed research/survey opportunities and participants are advised to clarify any questions/concerns prior to participation with contacts listed for each research/survey opportunity.
Seeking Participants for Survey on Attitudes Toward Hearing Dog Use
Brief Description: Seeking D/deaf and hard of hearing volunteers to participate in an anonymous online study assessing attitudes toward hearing dog use. Participants must identify as Deaf, deaf, hard of hearing, Deaf-Blind, late-deafened, or hearing impaired, and be aged eighteen years or older. Volunteers who do not have hearing dogs as well as those who are currently or were previously partnered with a hearing dog are encouraged to participate. To thank volunteers for participating, they will be offered the opportunity to select a charity to which the researcher will make a donation.
Full Text:
My name is Cara Miller, and I am a graduate student studying Clinical Psychology at Gallaudet University. My dissertation topic relates to D/deaf and hard of hearing individuals’ attitudes toward hearing dog use. The purpose of my study is to learn more about how hearing dog use is acknowledged, perceived, and understood by individuals who are deaf or hard of hearing.
I am seeking D/deaf and hard of hearing volunteers to participate in an anonymous online study assessing attitudes toward hearing dog use. Participants must identify as Deaf, deaf, hard of hearing, Deaf-Blind, late-deafened, or hearing impaired, and be aged eighteen years or older. I welcome volunteers who do not have hearing dogs as well as those who currently or were previously partnered with a hearing dog.
The link below will direct volunteers to the Informed Consent letter which must be read before completing the survey should they wish to do so. To thank volunteers for participating, they will be offered the opportunity to select a charity to which I will make a donation.
The following link will take volunteers to the Informed Consent form and study. https://www.surveymonkey.com/s/8VSTQ9W
This study has been approved by the Gallaudet University Institutional Review Board for the Protection of Human Subjects (IRB). Thank you in advance for your assistance in spreading the word about this survey as well as the link at which the survey may be reached.
Cara Miller
Clinical Psychology Doctoral Candidate
hearingdogstudy@gmail.com
Gallaudet University
Social Networking Habits of
Adolescents who are Deaf or Hard of Hearing Survey - UAMS
Dear Hands & Voices Members and Friends,
I am conducting a research project focused on internet-based social network habits of adolescents who are d/Deaf or hard of hearing. If your adolescent (13 to 18 years of age) is interested in participating, with your consent, please ask them to complete the brief online survey.
Here is the link to the Survey: URL: http://perception.uams.edu/q4/perception.dll
Please, login using the following name and password:
Name: Facebook
Password: Twitter
Participation in the survey is purely voluntary and completely anonymous. Answers will be used for this research study only and will be destroyed upon its completion. The survey should take no more than 5 minutes. Thank you so much for your support!
Sincerely, Shawnee Wong, B.A. Au.D. student at the University of Arkansas for Medical Sciences
Student Research Project
Dear Hands & Voices members and friends,
This research project focuses on identities of the d/Deaf, Deaf culture, children's rights and cochlear implants.
Here is the link to the Survey - Submit Survey Here
Participation in the Survey is anonymous and all answers will be used for the purpose of this study only. This survey should not take a respondent more than 3-5 minutes.
Thank you so much for your support!
Sincerely,
Ksanna Mazhurina
(mother of a deaf child and graduate student at Endicott College in Beverly, Massachusetts)
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Hands & Voices is pleased to announce it’s Partnership with the:
National Early Childhood Assessment Project (NECAP – “kneecap”)
Principal Investigator: Christine Yoshinaga-Itano, Ph.D.
Project Coordinator: Allison Sedey, Ph.D.
We are excited to announce a new project awarded to Dr. Christine Yoshinaga-Itano at the University of Colorado-Boulder by the Centers for Disease Control (CDC). The aims of this project are to:
- support interested states in implementing a standard assessment battery for children from birth to 4 years of age who are deaf or hard of hearing
- examine the feasibility of creating a national database of early childhood outcomes
- assist states in interpreting assessment results and using these results to drive intervention goals and decisions
- characterize the service delivery models of early intervention programs throughout the United States
- determine early intervention program characteristics that are related to more successful language outcomes for children who are deaf or hard of hearing
Eligible Participants
All children from 6 months to 4 years of age with permanent hearing loss are eligible to participate. Children whose loss is not permanent (e.g., cases where the hearing loss is solely a result of otitis media) are not eligible. Eligible children may have:
- Unilateral or bilateral loss
- Conductive, senori-neural, or mixed hearing loss
- Any degree of permanent hearing loss from mild to profound
- Multiple disabilities or hearing loss only
- English or Spanish as the language of the home
Benefits of Participation
Individual Child and Family Benefits
- Includes parent input in the assessment process
- Measures children’s skills and abilities across a variety of developmental areas
- Allows parents and interventionists to monitor a child’s progress over time and identify potential delays at their onset
- Compares a child’s language abilities to both children who are hearing and other children with hearing loss
- Provides a data-driven approach to making educational programming decisions
- Assists in the generation of IFSP/IEP goals
Program Benefits
- Provides statewide and program-specific accountability data on an annual basis
- Allows programs to examine outcomes across different subgroups of children
- Informs professional personnel preparation needs
- Includes access to normative test data on children who are deaf or hard or hearing
- Results in networking with program directors and EHDI personnel in other states
- Gives states an opportunity to contribute to a national database which will allow us to characterize the language strengths and weaknesses of children with hearing loss and identify factors that are predictive of more successful language outcomes
If you have questions or are interested in becoming involved in this project, please contact:
Allison Sedey
University of Colorado-Boulder
409 UCB
Boulder, CO 80309
303: 492-0078
Allison.Sedey@Colorado.edu
Hands & Voices Contact: Janet DesGeorges
303-492-6283
janet@handsandvoices.org
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GPOD Survey
Help us inform professionals and policy makers throughout the world on the best ways to support families with a deaf child.
When a child is identified with a hearing loss, parents and professionals need to work together in the best interest of the child and family. We are, therefore, seeking feedback from parents around the world on the most effective and appropriate family support practices available. Every family’s support needs and experiences are important.
To help us understand the support needs and experiences of your family, we would appreciate it if you could take 10 minutes to complete our survey. The results of the survey will be used to produce formal recommendations for Best Practices in Family Support. This document will be presented at NHS 2010 – the final worldwide newborn hearing screening conference in Como, Italy.
To start the survey
click here
Thank you for your participation!
For parents who are unable to complete the survey online, please download and print the survey and return to Ann Porter at the address below.
Who is carrying out this survey?
 Under the trees at the NHS 2008 Conference in Como, delegates from the various parent groups who were present had a meeting. We felt it was time to bring the parent agenda to the table at NHS 2010
And so GPOD was formed - a Global Coalition of Parents of children who are deaf or hard of hearing - with the goal of "promoting improved systemic protocols and practices which encourage informed choice and the empowerment of families with a deaf child throughout the world."
The participants in this first gathering were (L-R): Ruth Wallace (UK), Pauline Walker (UK), Roz Keenan (Australia), Ann Porter (Australia), Jodi Cutler Del Dottore (Italy), Janet Des Georges (US), Leeanne Seaver (US) and Sean Moran (UK).
The organizers of NHS 2010 have encouraged and supported our vision and have given parents the opportunity to inform professionals and policy makers throughout the world on the most effective and appropriate family support practices at NHS 2010.
Ann Porter
Email: ann.porter@aussiedeafkids.org.au
Phone: 02 9566 4060
Address:35 Wharf 8
56a Pirrama Road
Pyrmont NSW 2009
Australia
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Science of Learning Center on Visual Languages and Visual Learning (VL2)at Gallaudet University
ANNOUNCING the launch of a longitudinal study of young deaf and hard of hearing children by the Science of Learning Center on Visual Languages and Visual Learning (VL2) at Gallaudet University. The three-year study will involve gathering detailed information and collecting data regarding young deaf and hard of hearing children’s language development, communication, and developmental profiles.
Along with surveys of parents, teachers, and school administrators, a comprehensive battery of assessments administered by trained evaluators from Gallaudet University will be given to deaf and hard of hearing children whose families agree to participate.
VL2 is seeking schools to participate in the study. Parents are encouraged to talk to their school administrators and inform them about the study. Participation is not limited to children who sign; all communication approaches are eligible to participate.
I have set up a blog on the VL2 Public Wiki http://vl2wiki.editme.com/ to provide updates about the project and to answer questions that you may have.
Sharon Baker, Research-Practice Integration Team member
For more information or to register as a partnership school, contact:
Thomas Allen, Ph.D., Principal Investigator
Science of Learning Center on Visual Language and Visual Learning
Gallaudet University SLCC 1200
800 Florida Avenue NE, Washington, DC 20002
Phone: 202-651-5866
Email: VL2@gallaudet.edu
Science of Learning Center on Visual Language and Visual Learning (VL2)
The VL2 Center, located on the campus of Gallaudet University in Washington, DC, is one of six Science of Learning Centers (SLC) funded by the National Science Foundation grant # SBE-0541953. The Center brings together deaf and hearing researchers and educators from national and international institutions to conduct interrelated studies across disciplines. VL2’s primary mission is to gain a greater understanding of the biological, cognitive, linguistic, sociocultural, and pedagogical conditions that influence visual language and visual learning. More information may be found at www.vl2.gallaudet.edu.
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